Sunday, May 24, 2009

A Weird Couple of Weeks

Hello Everyone, I know it has been sometime that I have blogged and I am sorry about that.. i have been horribly ill. My husband's surgery went well and he is on his way to recovery and doing much better now but in the midst of it all.. I relasped and got sicker and developed this weird purple vein like rash on my upper left thigh. In the past the Lyme Disease affected my heart so I called the heart doctor and went to see him as I thought maybe the rash was related to my heart. He referred me to another specialist..a rheumotologist who knew what the rash was.. it is called levido and he in turn sent me for blood work and I had a long talk with him on what has gone on with my health since I was in my 30's. I went back to this doctor last week and took my bloodwork from a long time ago.. when I was in my 30's as I have all of my medical records. I have Lupus! In all this time, my Lyme doctor was focusing on my Lyme Disease and the Lupus was not detected and that is why I was not getting better. I am so thankful this rash showed up as it was a heaven sent rash. My medication has been changed and I hopefully will get better now.. my joints were so swollen ... he immediately put me on a low dose of steroid that has brought the inflammation down in my joints and put me on a anti-malarial drug to treat the Lupus. He said the Lupus caused my pericarditis in my heart as well. He thinks that when i got bit by that little tick that it stirred up the Lupus but I was only being treated for the Lyme and therefore I was not getting better. I hope this new treatment will help me to get back to myself a bit and back to blogging and back to the real world! I wanted to let my blogger friends what has been going on with me! Wish me luck! Hugs, Linda


BumbleVee said...

Sometimes I just want to punch all medical practitioners in the throat!! After all this time you would think they might have been a bit suspicious that some other thing was at work and have at least made some effort to go down a different road in search of it. But, no...they alwaays have their own agenda... make more money. Shove everybody through as fast as they can and send in claim forms..... sheeesh.

Boy, I sure hope this is the light at the end of the tunnel for you Linda....roll on to some easier and happier days...!! This will give you such a boost mentally and emotionally. Welcome back to bloggyville ...

vivian said...

HI Linda! I'm glad you know what your dealing with now.. YOure right, the rash was heaven sent! I hope that you'll be feeling much better not and that we'll be seeing more of you!
have a great week!

Jazze Junque Inc. said...

I hope you and your hubby will be well~ Mercedes

Folksie Linda said...

Thank you so much for all your sweet comments and I totally agree with you's crazy.. i am already feeling a bit better from the new medicine. I miss everyone so much.. i just was so ill and so weak..even if i went online.. i couldn't do much. i think that is all going to change for me now finally! I am so hopeful! Love you guys!

Peng Peng said...

wow Linda, what an odyssey it has been for you! Thankfully you've been rediagnosed and now with attention to the Lupus i hope it makes u all better again :) Maybe the Lyme disease has been long gone during this time? Keep us posted!
thinking of ya, big hugs xoxo

Mrs.Kwitty said...

Oh MAN!!! That really sucks! I'm glad that they have finally figured out about the Lupus (and I'm sorry that you have that, those auto-immune diseases are the pits) and can get you some treatment and some RELIEF! God bless you, sweety-and may you get back to what you love best ASAP!
Smiles and Hugs, Karen

Sweetina said...

Oh Dear Linda,
You must have been feeling very ill.
I'll bet it's much better to have the correct diagnosis in order for you to have the right meds and medical attention in order to feel well again.
SO glad Hubby is better.
Thinking of you~

Pieceful Bits said...

I know it's been a few months since you posted this...but I hope you are feeling better with the new meds!